Lucy's Story

High-Risk Neuroblastoma

No Evidence of Disease

In March of 2009, our world was turned upside down when our daughter, Lucy Rose, was diagnosed with High Risk Neuroblastoma at age 3. Her tumor was found during a routine well-child check. Since then, she has endured 2 surgeries, 6 cycles of chemotherapy, 14 rounds of radiation, 6 months of cis-retinoic acid, 14 cycles of 3f8 antibody and multiple blood transfusions, hospitalizations and medical tests. 

Today, Lucy is healthy, happy, and enjoying life. She has been NED (no evidence of disease) since her tumor was removed, and we hope and pray that she remains NED for the rest of her life. We are so fortunate to live in a community in which our family was taken care of by the generosity of friends, family and strangers. The outpouring of support allowed us to focus on Lucy and getting her through treatment. There isn’t a day that goes by that we are not humbled by this.

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